Beyond Undetectable. Your Lived Experience. Beyond Suppression.

Share your experiences living with HIV to help improve care, advance research, and inform policy. Your insights will shape the future of HIV services and support.

Take the Survey
1.2M People living with HIV in the US
32 States with HIV criminalization laws
U=U Undetectable = Untransmittable
20-30 Minutes to complete

Lift Every Voice

Real people sharing real experiences to drive change

547 Voices Heard
1,000 Goal
54%

Over halfway there! Join 547 others in creating evidence for change.

Latest response: 2 hours ago

Why Your Voice Matters

Shape Policy & Practice

Your experiences will directly inform recommendations for HIV services, social work practice, and policy reform nationwide.

Fill Critical Research Gaps

Social workers are essential to HIV care, yet their contributions remain largely unstudied. Your voice fills this evidence void.

Address the Disconnect

Biomedical science shows U=U works, but laws and practice lag behind. Help bridge this gap between evidence and reality.

Advance Health Equity

Identify barriers to care, support systems that work, and contribute to research reducing disparities in HIV services.

Amplify Lived Experience

Research rarely captures experiences with criminalization and biomedical innovations. Your perspective is needed.

Create Lasting Change

Results will be published in peer-reviewed journals and shared with providers, policymakers, and advocacy organizations.

HIV Awareness & Prevention Facts

Prevention Works
PrEP (pre-exposure prophylaxis) reduces the risk of getting HIV from sex by about 99% when taken as prescribed. PEP (post-exposure prophylaxis) can prevent HIV when started within 72 hours after exposure.
U=U is Science
When HIV treatment achieves an undetectable viral load, there is effectively no risk of sexual transmission. This scientific consensus transforms what it means to live with HIV.
Treatment as Prevention
Modern antiretroviral therapy allows people with HIV to live long, healthy lives with life expectancies approaching those without HIV when treatment is started early.
Testing is Key
About 13% of people with HIV in the US don't know they have it. Regular testing and early diagnosis improve outcomes and prevent transmission.
Innovation Continues
Long-acting injectable HIV medications now offer treatment options that don't require daily pills, improving quality of life and adherence for many people.
Stigma Harms Health
HIV stigma and discrimination remain major barriers to testing, care, and treatment. Criminalization laws in 32 states conflict with current medical science.

U=U: Undetectable = Untransmittable

This changes everything.

When people living with HIV achieve and maintain an undetectable viral load through treatment, they cannot sexually transmit HIV to others. This scientific consensus, backed by decades of research, should inform policy, reduce stigma, and guide practice—yet many providers still don't discuss it with patients. Your survey responses will help us understand these gaps.

About the Survey

Time Required
20-30 minutes
Confidentiality
Anonymous
Care Experiences
HIV care & access
Key Topics
U=U, PrEP, telehealth
Support Services
Social work, mental health & case management
Open Response
Share what matters to you

Who can participate: HIV+/AIDS adults in the US.